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Activities and Meetings at Sanvedana





Meeting: 21st January 2010, Thursday
From 11:00 a.m. to 12:30 p.m.

Venue
Somani Neurocare Centre,
Ashwini Dignostic Pvt. Ltd.
Savedi Road, Ahmednagar: 414003

Contact
Dr Ravindra Somani
Dr Avinash Chandane
Yashoda Wakankar

Telephone: +91 241-2417600, 2431162
Cellphone: +91 9822008035
E–mail: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it / This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Indian Epilepsy Association, Pune Chapter
Indian Epilepsy Association has re-started from 2nd September 2007. Dr Nandan Yardi is the president, Dr Hemant Sant and Dr Satish Nirale are the trustees and Mrs. Yashoda Wakankar is the secretary of the Pune chapter.

IEA Pune chapter celebrated National epilepsy day on 17th November 2008. All the members and the doctors got together in the Patrakar Nagar Hall. Mrs. Wakankar started the program with a prayer and the group song. Dr Yardi and Dr Sant took turns speaking about Epilepsy in a very simple & nice language. Dr. Yardi spoke about the new findings on epilepsy and Dr Hemant Sant talked about the myths and the facts about epilepsy. Both the doctors then patiently addressed all the questions from the members and their parents.
Activities from April 2009 to March 2010
  • Sharing meetings of people with epilepsy and their care givers went on in regular basis. Especially in April, all the members shared about the 5th anniversary of Sanvedana’s event in March.
  • Dr Anil Awachat was invited for Sanvedana’s meeting. This meet’s subject was “Parenting”. Even if Sanvedana has covered this subject so many times, all the members always like to listen from Dr Awachat, because every time they get the new and different point of view.
  • This year Sanvedana’s August meeting was cancelled due to swine flu in Pune.
  • This year, the founder and the director of Sanvedana Foundation Yashoda Wakankar appeared for the exam “Diploma in Epilepsy Care”, which was from Bangalore University and CBR Network. For that she completed 36 assignments and case studies through Sanvedana. She went to Bangalore for the exam. And the best thing is, she has stood first in this exam.
  • All the self help group’s interviews were arranged by Akashwani Pune radio station. For Sanvedana’s interview Yashoda, Mr Phatak and Dr Sant were invited.
  • Dr Ravindra Somani, MD Physician and Neuro care specialist from Ahmednagar contacted Sanvedana Foundation. He showed interest in opening epilepsy self help group in Ahmednagar. After two meetings it was decided that Dr Somani will start Sanvedana’s Ahmednagar Chapter. Dr Somani and his wife Mrs Somani took all the initiative and arranged a big event for the inauguration.
  • Sanvedana foundation started its new branch at Ahmednagar on 6th September 2009. Dr. Ravindra Somani and his wife Mrs. Nanda Somani took the initiative and announced the inauguration of three self help groups in Ahmednagar for Epilepsy, Paralysis, and Migraine.

    In Maharashtra, specifically in Pune and Mumbai there are many self–help groups working in various fields. But in rural area like Marathwada, they don’t have any idea of such groups. That’s why opening ceremony of self–help groups was a new event for people of Ahmednagar, and they were too excited for the same.

    Yashoda Wakankar, Rashmi Joshi and Mohan Phatak from Sanvedana were invited for the inauguration. Dr Jayant Karandikar was the chief guest.

    This event was covered by media; through television news, news papers, radio news etc.
  • Yashoda, Pritam and Shubhada from Sanvedana again visited to Ahmednagar to conduct their 1st epilepsy SHG meeting. More than 60 people with epilepsy were present for the meeting. This meeting was arranged for the sharing of people with epilepsy and their parents.
  • Mrs. Sakina Bedi is a blind woman in Pune. Even if Sakina is blind, she has a very different vision of work and confidence. She is the director of Pune Blind’s Association. Sanvedana Foundation invited Sakina for interview in monthly meeting. The journey from Sakina’s childhood, school education, graduation and post graduation, marriage, and working for blind people was really inspiring for Sanvedana members!
  • Sanvedana was invited in Mental Hospital for the meeting with the superintendent. Sanvedana core group started going epilepsy ward in Mental Hospital once in a week. It was a very different experience for Sanvedana. Because epilepsy in normal city life and epilepsy with other problems in Mental Hospital are absolutely different.
  • National Epilepsy Day in Mental Hospital was celebrated on 18th November 09. Sanvedana Foundation was invited for this event. More than 50 parents of the epilepsy patients in Mental Hospital were present for this event. Radhika spoke on the subject “parenting”, and Yashoda spoke about “Importance of SHG for the parents”. Psychiatrists, nurses, neuro psychologists also spoke in this event.
  • Indian Epilepsy Association, Pune chapter celebrated National Epilepsy Day on 29th November, in the collaboration of Sanvedana Foundation. Dr Nandan Yardi, Dr Satish Nirale were present as the president and the trustee of IEA Pune chapter, and Dr Anil Awachat was there as a chief speaker.
  • Pune Municipal Corporation has allowed Sanvedana to use the hall in Chittaranjan Watika for the meetings and the counseling centre.
  • Association of self help groups in Pune, named as Setu, completed 2 years in this December. Setu’s second anniversary was celebrated on Sunday 20th Dec 09, at Niwara Sabhagrih. Dr Maya Tulpule, the chairperson of Setu told about the journey of Setu in brief. Dr Vihang Vahiya and Dr Vidyadhar Watave did the excellent role plays of the psychiatrist and the patient. They covered the topics epilepsy, schizophrenia, parenting, anxiety, alcoholism etc in this role play. The chief speaker Mr Sada Dumbare spoke about “the role of SHG in today’s life”. Program was sum up with Dr Ulhas Luktuke’s lecture.
  • When the year 2010 started, Sanvedana members decided to go for the picnic at “Morachi Chincholi” on Sunday, 17th Jan 2010 with the new enthusiasm. Morachi Chincholi, by name itself means a village of tamarind trees and a town of dancing peacocks all around. The distance from Pune to Morachi Chincholi is just 55 km. It is situated near Ahmednagar–Pune highway near Shirur, Shikrapur, Ranjangav Ganapati (one of the holy place from Eight Vinayakas), which is beautiful picnic spot near Pune. Sanvedana members enjoyed the picnic a lot!
Activities from April 2008 to March 2009
  • Radhika Deshpande and Yashoda Wakankar, the trustees of Sanvedana Foundation participated in the counseling course arranged by SETU, which was trained by the psychiatrist, Dr Ulhas Luktuke. In that course REBT, CBT, and Counseling these three sessions were covered.
  • Sanvedana helped Shweta Association, the self help group of vitiligo, in their annual program. Sanvedana’s members participated in the street plays which were held for one week, all over Pune city.
  • Sanvedana Foundation have announced in beginning of the year 2008, that this year we are going to emphasis on ‘Marriage and Epilepsy’. According to that Sanvedana started campaigning. The articles were published in Marathi and English news papers, the interview of the chief trustee was arranged on radio, and the broachers were given in the reception room of the neurologists and in the hospitals too. More than 150 people with epilepsy registered their names in Sanvedana Foundation’s Epilepsy Marriage Bureau.
  • On 11th May 2008, Sanvedana arranged a matrimonial meet for people with epilepsy. www.aarogya.com helped Sanvedana for the publicity and to promote. The program went on very well with the tremendous response. The famous neurologist Dr Pradeep Diwate was invited as the chief guest and the author and famous writer in Marathi Dr Anil Awachat was invited as a speaker. Sanvedana is proud to announce that six marriages are fixed after the matrimonial meet!
  • Dr Shirisha Sathe, the psychologist was invited in Sanvedana’s monthly meeting. Dr Sathe spoke on the topic ‘positive thoughts’.
  • Sanvedana has decided to arrange the session for the bride and grooms who have registered their names in the matrimonial meet.
  • Mrs Aparna Ambike, the renowned social activist in the field of Breast Cancer, visited Sanvedana. She shared her views about the Breast Cancer. She also told how they are running Breast Cancer Support Group in Pune and how they are spreading awareness on this issue.
  • Sanvedana Foundation got a chance to participate in the well–known social NGO’s exhibition: Dene Samajache, which was held in the first week of October 2008. ‘Artistry’ institute arrange this exhibition every year. And so many people from Pune visits to the exhibition, who wish to help the NGOs for the good cause. Sanvedana members provided information about our work very enthusiastically to all the visitors.
  • SETU, the association of self help group got an opportunity to participate in Sakal Aarogya Exhibition. Being a part of Setu, Sanvedana also got a stall in this exhibition.
  • The talk show of self–help group leaders was arranged in Sakal aarogya festival. Yashoda Wakankar represented Sanvedana in that talk show. When the audience heard about so many self help groups at a time, they were really impressed!
  • So many members of Sanvedana have artistic knowledge. Some children with epilepsy have the drawing sense, some youngsters have writing skills and so many of us have poetry sense. Sanvedana tries to tell the members that they can concentrate what they can do instead of being sad on the point what they can not do! So we arrange so many sessions on art like: origami, drawing, writing, poetry, poem reading etc. Because of that some of our members have become performing artist. We have published one article on ‘art and epilepsy’.
  • Indian Epilepsy Association Pune Chapter has started in September 2007. Sanvedana and IEA Pune chapter has started working hand in hand. Dr Nandan Yardi is the chair–person of IEA Pune chapter. First IEA and Sanvedana arranged a program on 2nd Sept 2007. We also celebrated national epilepsy day, 17th Nov 2008 together. Well–known neurologist Dr Hemant Sant and Epileptologist Dr Nandan Yardi spoke on the subjects related to epilepsy.
  • Sanvedana Foundation’s 5th anniversary was celebrated on 7th March 08, at S.M. Joshi Hall, navi peth Pune 30. This anniversary was celebrated in the very big manner since it was Sanvedana’s 5th anniversary. Dr Rahul Kulkarni, the famous neurologist in Pune, Dr Anil Awachat the famous social activist, and Mukund Taksale the famous writer were invited for this event. More than 350 people were present in the hall.
Sanvedana’s website sanvedana.aarogya.com was inaugurated in this event.
Activities from 1st April 2007 to 31st March 2008
  • From 8th July to 12th July, Radhika Deshpande and Yashoda Wakankar, the Trustees and coordinators of Sanvedana Foundation attended the 27th International Epilepsy Congress, organized by International League against Epilepsy (ILAE), and International Bureau for Epilepsy (IBE), which was held in Singapore. Both of them got a very good experience with doctors, social workers and some patients in this field from all over the world.
  • Yashoda and Radhika also attended the Symposium for People with Epilepsy and their Carers. It was a one day session on 7th July 2007. In this session all the people living with epilepsy and their parents were permitted to attend. Yashoda as a recovered patient and Radhika as a parent shared their experiences as well. This was arranged by Singapore Epilepsy Foundation.
  • This year the progress of Sanvedana Foundation’s marriage bureau is very good. One article about ‘The marriage and epilepsy’, written by Yashoda Wakankar was published in the famous Marathi news paper ‘Sakal’. And got tremendous response from all over Maharashtra. To be precise, not only from Maharashtra but also from Marathi people settled in the other states, who read the article online. I am honoured to write that up till now 5 couples has got married, living with epilepsy. Few more couples are engaged and they will get married this year.
  • Art and Epilepsy: Sanvedana Foundation arranged the session on Art and Epilepsy, i.e. how art helps to come out of epilepsy, or how the person with epilepsy is more likely to be an artist. Yashoda wrote an article on this subject in news paper. She wrote about an Australian man who suddenly became an artist when he got affected with epilepsy. She also wrote about the other artists in history, who were living with epilepsy.
  • On 2nd Sept 2007 a big program was arranged for the inauguration of Indian Epilepsy Association’s Pune Chapter. Dr Nandan Yardi is the chair person. All the members of Sanvedana Foundation got an opportunity to attend this function. As a representative of Sanvedana Foundation, Yashoda spoke about the activities for 10 minutes. That day a film on epilepsy made by the students in film institute was presented, which was really good to spread out the message.
  • On 4th October 2007, 15 members of Sanvedana Foundation attended the National Epilepsy Conference held in Mumbai arranged by Indian Epilepsy Association, and Indian Epilepsy Society. All the members could meet the other epilepsy self help group from all over India, could discuss with them. And we heard the speeches of expertise in this field regarding epilepsy.
  • On 17th November, the National Epilepsy Day, we were invited to Bharati Hospital to speak about epilepsy, in front of the patients from rural area. The drawing competition was also held for the children.
  • Bharati Hospital’s pediatric ward’s H.O.D. invited Yashoda Wakankar and Radhika Deshpande on every moth’s 2nd Friday, to speak with parents of epileptic children. This hospital is little outskirts of Pune, so generally the people from that side of rural area visit here. They have so many myths about epilepsy in their mind, which affects the growth of their child. These group sessions are helpful for the parents to come out of the shadow.
  • Sanvedana Foundation got an invitation from Schizophrenia Awareness Association for the workshop arranged for self help groups. The representative of 12 SHGs were present there. All of them represented a speech about their group, and told about the kind of problems they get while running the support group and how they coup up with the problems.
  • The lecture about Pranayam was arranged for all the patients and parents. Mrs Bhate, the student of well-known Ramdevji Maharaj spoke about pranayam, and how the pranayam helps to coup up with epilepsy.
  • Dr Rajas Deshpande, a famous Neurologist was invited to our monthly meeting. Patients and parents asked him so many questions about epilepsy, and he explained us very nicely and honestly. Dr Deshpande not only told us only about epilepsy, but also spoke about how we have to be a very good human being first.
Archives
Activities from April 2006 to March 2007
  • Sanvedana Foundation arranged an interview of two ladies who are running ‘Sudatta’ Adoption Support Group. Some of the epileptic patients always hesitate to take a chance for a child, because in science, doctors have written that there is six percent possibility to pass on epilepsy in new generation. That’s why Sanvedana Foundation contacted adoption support group. In that meeting all of us could hear about the enjoyment to adopt a baby, and to give a new life to the baby!
  • Renutai Gavaskar visited Sanvedana Foundation few times to teach patients through the stories. Renutai works for street children and she always communicate with children via story telling. Sanvedana Foundation’s members enjoyed this session a lot.
  • Diet and Epilepsy: As patient’s requirement Sanvedana Foundation again arranged a lecture of Dr Vijaya Sathe, a diet specialist. Dr Vijaya Sathe told very immensely, how diet has helped epileptic patients up till now, and how it has helped to come out of epilepsy’s side effects.
  • Very good news of this year is, two marriages were arranged through Sanvedana Foundation’s Marriage Bureau, and went on very good.
    All of them are epileptic patients, and their attacks are in control.
  • Sanvedana Foundation found that some of the patients living with epilepsy are affected with schizophrenics as well. And vice versa. That’s why, Sanvedana co-ordinate with Schizophrenia Awareness Association, a very well know institute in Pune. Three lectures and a work-shop were arranged in collaboration with SAA. 
  • The memorable day for Sanvedana members was 11th Feb 2006. It was a pleasant morning, when 30 members of Sanvedana Foundation started from Pune to Otur, near Junnar, in a beautiful real farm for a trip. All the members reached Otur, in a real farmer’s house in his farm. The farmer told about his work, about his experiments, about th products and about his problems as well. It was a very different experience for Sanvedana’s members. Sanvedana visited to the river in Otur, to the ‘aamraai’ (mango trees) etc. And while coming back the members visited to Ozar, which is very famous for Ganapati Temple. This trip was really non-forgettable.
Activities from April 2005 to March 2006
  • As of last year, every alternate month, Sanvedana arranged sharing meetings; where Sanvedana members discussed their problems and their views on epilepsy. Around 40-50 patients and their parents came to every meeting.
  • Sanvedana Foundation’s ‘Epilepsy Counseling Centre’ has been functioning and counseling patients every Tuesday evening.
  • First epileptic patients used to be frightened about the ‘brain surgery’. But when they saw the examples of successful brain surgeries, they started thinking about that. In Sanvedana Foundation’s counseling centre, so many patients got counseled about the surgery. More than 50 patients went through the test required for surgery, and 25 patients got operated in Tiruvananthapuram successfully. Of course they knew that every patient’s surgery is not possible.
  • Sanvedana Foundation arranged three lectures of Dr Ulhas Luktuke (Psychiatrist) about ‘Stress Management’ for epileptic patients and their parents, continuously for three months. Dr Luktuke not only gave the lectures but also arranged some interesting games and puzzles. Dr. Luktuke taught few things through the stories as well.
  • Dr Anil Awachat was invited to interact with Sanvedana members. He spoke about the Hobbies. At the same time he taught them origami; a paper fold art, to the members.
  • This year, the biggest activity of Sanvedana Foundation was about ‘The Marriage’. Arranging a marriage and having successful married life is a very big problem for epileptic patients, even if the patient’s seizures are controlled by medicines, or the patient is cured by operation. This leads to depression fro the epileptic patients. Sanvedana arranged a program to bring awareness & change the view of the society to look at the person suffering with epilepsy as a normal person! Sanvedana arranged a work-shop of the members and their parents. The chief guests were Mrs. Gauri Kanetkar (Director of Anuroop Marriage Burro), Mrs. Vandana Kulkarni (Director of Sath Sath Marriage Burro and Marriage Counseling Centre), and Dr. Maya Tulapule (Director of Shweta Association, which works for people suffering with leukoderma.). Three of them shared their very good experiences:
    1. How people want to hide their abnormalities before marriage and how bad it is.
    2. If you share the every good and bad thing in your life with your partner before marriage, the partner could be rejecting you, but also it could be a start of good married life.
    3. As any normal person can also get any disease after marriage. That’s why society has to accept the little abnormality as well.
  • Mr. Phatak, one of the parent in Sanvedana Foundation formed a new marriage burro which is specially for epileptic patients and other handicapped people as well. More than 40 epileptic patients filled the forms of this new marriage burro.
  • One of the meetings of Sanvedana Foundation was arranged for the songs and poems. Sanvedana always encourages the members for hobbies, but co-incidentally most of the members like singing and some of them do poems very well.
  • The memorable day for Sanvedana members was 20th Feb 2006. It was a pleasant morning, when 40 members of Sanvedana Foundation started from Pune to Pen, near Panvel, in a beautiful farm house for a trip. At the same time 60 members of Mumbai’s Samman Epilepsy Support Group’s members started from Mumbai to Pen. ‘Samman’ is the Mumbai chapter of ‘Indian Epilepsy Association’. So this was the get together of Mumbai and Pune support groups, as a new horizon. All the members enjoyed a lot. First they started by sharing and telling each other about their activities, about coping up with the disease. They played lot of funny games, they danced they sang as well. This was really a wonderful and non-forgettable day for Sanvedana Foundation.
Activities from April 2004 to March 2005
  • Every alternate month, Sanvedana Foundation arranges sharing meetings, where Sanvedana members discuss their problems and their views on epilepsy, which helps the new members to cope–up with epilepsy. Around 40–50 patients and their parents came to every meeting.
  • Sanvedana Foundation is running an ‘Epilepsy Counseling Centre’ where counseling is done every Tuesday evening. Up till now around 300 people have visited the counseling centre for their epilepsy problem. Many a times, people get scared to speak in the group about their disease, so they use the counseling centre and they get proper direction for the treatment.
  • Sanvedana Foundation arranges some special meetings for Youth. The problems of youngsters, suffering with epilepsy are different these meetings are useful for them. For some meetings Ms. Renutai Gavaskar was an invited guest.
  • Sanvedana Foundation invited Dr Nandan Yardi, (Epileptologist), and Dr Surekha Rajadhyaksha (Epilepsy Paediatrician), to share the medical view about Epilepsy.
  • Sanvedana Foundation arranged one lecture about ‘Yoga and Epilepsy’, i.e. How Yogavidya is helpful for epileptic patient. That lecture was with practical training, so all the patients and parents appreciated it.
  • One lecture was on ‘Diet and Epilepsy’, which was given by Dr. Vijaya Sathe, (Dietician). According to her, an allopathic medicine does the job of repairing during an illness, whereas nutrition & diet does the job of servicing. The topic of her lecture was on nutrition therapy for epileptic patients. The medicines, which patients take for these diseases, contain foreign chemicals, which may be harmful to our kidney, liver & brain. These medicines never reach the root cause of the diseases. So instead, if the epileptic patients have a proper diet with right vitamin supplements, their health will improve.
  • Sanvedana Foundation arranged a workshop of hobbies. In that workshop patients realized how hobbies help them to divert their mind from the disease.
  • Sanvedana Foundation arranged a trip to ‘Surya Shibeer’, near Varasgaon Backwater. This outing and get–together was just for enjoyment and relaxation in nature. All Sanvedana members and their parents really enjoyed this picnic. Sanvedana members walked in the jungle, and a guide gave them information about nature. This was a very good experience for them.
  • The founder of Sanvedana Foundation: Ms. Yashoda Wakankar and her colleagues visited the rural area of Otur, near Pune. Dr Bankar in Otur invited all the epileptic patients and their parents from Otur and the nearby villages. The meeting was held in a Government Hospital in Otur. Sanvedna members tried to educate them about the myths surrounding epilepsy and encouraged them to get treatment.
  • Sanvedana Foundation group also visited Manchar district. Mrs. Yashoda Wakankar spoke about myths surrounding epilepsy in the girl’s High school. She educated them on the dos and don’ts of an epileptic attack.
  • On 20th March 2004, Sanvedana Foundation celebrated the first birthday of the group. The program was arranged in Apte Hall. Some of the members of Sanvedana and their parents were on stage, and a talk–show was arranged. They shared their experiences about epilepsy and how they benefited from Sanvedana Foundation. Dr Anand Nadkarni (Psychiatrist) and Dr Praveena Shah (Neurologist) were the chief guests of this program. Dr Praveen Shah is running Samman Epilepsy Support Group in Mumbai. Both of them gave speeches about the concept of ‘Support group’, and explained some guide lines to the Sanvedana Foundation’s members.At the end of the program, Sanvedana members sang a group song, which was written and composed by one of the trustees.
Activities from Feb 2004 till date.
  • Sanvedana Foundation epilepsy self help group has started on 22nd Feb 2004.
  • Every month, on third Sunday, Sanvedana Foundation arranged sharing meetings; where Sanvedana members discussed their problems and their views on epilepsy. That was always useful for the new epileptic patients how to cope–up with epilepsy. Around 40–50 patients and their parents came to every meeting.
  • Sanvedana Foundation is running ‘Epilepsy Counseling Centre’ on every Tuesday evening. Up till now around 500 people have visited to the counseling centre for their epilepsy problem.
  • Sanvedana Foundation arranged some special meetings for Youth. The problems of the youngsters, suffering with epilepsy are different. So these meetings were very useful for them. For some meetings Ms. Renutai Gavaskar was invited as a guest.
  • Sanvedana Foundation arranged one lecture about ‘Yoga and Epilepsy’, i.e. How Yogavidhya is helpful for epileptic patient. That lecture was with practical training, so all the patients and parents liked it very much.
  • One lecture was arranged twice on ‘Diet and Epilepsy’, which was given by Dr. Vijaya Sathe, (Dietician). According to her, an allopathic medicine does the job of repairing during an illness, whereas nutrition & diet does the job of servicing. The topic of her talk was on nutrition therapy for epileptic patients. The medicines, which patients take for these diseases, contain foreign chemicals, which may be harmful to our kidney, liver & brain. So instead, if the epileptic patients have a proper diet with right vitamin supplements, their health will improve.
  • Dr. Maya Tulpule was invited to talk about "Shweta" – a support group started by her to bring together people suffering from Lucoderma. We also invite other self–help groups to know about their problems.
  • Sanvedana Foundation arranged a workshop of hobbies. In that workshop patients realized how hobbies help them to divert their mind from the disease.
  • Every year we arrange a trip. Once we visited to ‘Surya Shibeer’, near Varasgaon Backwater. This outing and get–together was just for enjoyment, relaxation with nature & not for discussing epilepsy and issues. All Sanvedana members and their parents really enjoyed this picnic. Sanvedana members walked in the jungle, and a guide gave them information about the plants, trees and the nature as well. This was a very good experience for them.
  • The founder of Sanvedana Foundation: Ms. Yashoda Wakankar and her colleagues visited to the rural area, to the village Otur, near Pune. Dr Bankar in Otur invited all the epileptic patients and their parents from Otur and other villages nearby, to the meeting. The meeting was held in Government Hospital in Otur. Everyone was listening intently to what Sanvedana members were saying, about how to cope–up with disease, and not to lose hope and to have a positive attitude towards life. There are very much myths about epilepsy in rural area, but in the lectures Sanvedana members tried to tell people to come out of it and to take proper treatment.
  • Sanvedana Foundation group also visited to Manchar district. Ms. Yashoda Wakankar spoke about myths about epilepsy in girl’s High school. She emphasised on the subject – if a person gets epileptic attack, what to do and what not to do.
  • Sanvedana Foundation arranged three lecture of Dr Ulhas Luktuke (Psychiatrist) about ‘Stress Management’ for epileptic patients and their parents, continuously for three months. Dr Luktuke not only gave the lectures but also arranged some games and puzzles by which patients learned so many things interestingly. Dr Luktuke taught few things through the stories as well
  • Sanvedana Foundation found that some of the patients living with epilepsy are affected with schizophrenics as well. And vice versa. That’s why, Sanvedana co–ordinate with Schizophrenia Awareness Association, a very well know institute in Pune. Three lectures and a work–shop were arranged in collaboration with SAA.
  • From 8th July to 12th July, Radhika Deshpande and Yashoda Wakankar, the Trustees and co–ordinators of Sanvedana Foundation attended the 27th International Epilepsy Congress, organized by International League against Epilepsy (ILAE), and International Bureau for Epilepsy (IBE), which was held in Singapore. Both of them got a very good experience with doctors, social workers and some patients in this field from all over the world.
  • We arranged the session on Art and Epilepsy, i.e. how art helps to come out of epilepsy, or how the person with epilepsy is more likely to be an artist. Yashoda wrote an article on this subject in news paper. She wrote about an Australian man who suddenly became an artist when he got affected with epilepsy. She also wrote about the other artists in history, who were living with epilepsy.
  • On 17th November, the National Epilepsy Day, we were invited to Bharati Hospital to speak about epilepsy, in front of the patients from rural area. The drawing competition was also held for the children.
  • Bharati Hospital’s pediatric ward’s H.O.D. invited Yashoda Wakankar and Radhika Deshpande on every moth’s 2nd Friday, to speak with parents of epileptic children. This hospital is little outskirts of Pune, so generally the people from that side of rural area visit here. They have so many myths about epilepsy in their mind, which affects the growth of their child. These group sessions are helpful for the parents to come out of the shadow.
  • Sanvedana Foundation got an invitation from Schizophrenia Awareness Association for the workshop arranged for self help groups. The representative of 12 SHGs were present there. All of them represented a speech about their group, and told about the kind of problems they get while running the support group and how they coup up with the problems.
  • The lecture about Pranayam was arranged for all the patients and parents. Mrs Bhate, the student of well–known Ramdevji Maharaj spoke about pranayam, and how the pranayam helps to coup up with epilepsy.
  • ‘SETU, the association of self help groups in Pune’ is formed in January 2008. And Sanvedana has become a member of the ‘SETU’ group. Yashoda Wakankar is appointed as the secretary of SETU.
  • Radhika and Yashoda, the trustees of Sanvedana Foundation participated in the counseling course arranged by SETU, which was trained by the psychiatrist, Dr Ulhas Luktuke. In that course REBT, CBT, and Counseling these three sessions were covered.
  • Sanvedana helped Shweta Association, the self help group of vitiligo, in their annual program. Sanvedana’s members participated in the street plays which were held for one week, all over Pune city.
  • Dr Rajas Deshpande, the neurologist was invited in our monthly meeting. He spoke about epilepsy from the social and medical point of view. Dr Deshpande answered all the questions/queries of Sanvedana’s members, regarding epilepsy.
  • Sanvedana Foundation have announced in beginning of the year 2008, that this year we are going to emphasis on ‘Marriage and Epilepsy’. According to that Sanvedana started campaigning. The articles were published in Marathi and English news papers, the interview of the chief trustee was arranged on radio, and the broachers were given in the reception room of the neurologists and in the hospitals too. More than 150 people with epilepsy registered their names in Sanvedana Foundation’s Epilepsy Marriage Bureau.
  • On 11th May 2008, Sanvedana arranged a matrimonial meet for people with epilepsy. www.aarogya.com helped Sanvedana for the publicity and to promote. The program went on very well with the tremendous response. The famous neurologist Dr Pradeep Diwate was invited as the chief guest and the author and famous writer in Marathi Dr Anil Awachat was invited as a speaker. Sanvedana is proud to announce that six marriages are fixed after the matrimonial meet!
  • Dr Shirisha Sathe, the psychologist was invited in Sanvedana’s monthly meeting. Dr Sathe spoke on the topic ‘positive thoughts’.
  • Sanvedana has decided to arrange the session for the bride and grooms who have registered their names in the matrimonial meet.
  • Mrs Aparna Ambike, the renowned social activist in the field of Breast Cancer, visited Sanvedana. She shared her views about the Breast Cancer. She also told how they are running Breast Cancer Support Group in Pune and how they are spreading awareness on this issue.
  • Sanvedana Foundation got a chance to participate in the well–known social NGO’s exhibition: Dene Samajache, which was held in the first week of October 2008. ‘Artistry’ institute arrange this exhibition every year. And so many people from Pune visits to the exhibition, who wish to help the NGOs for the good cause. Sanvedana members provided information about our work very enthusiastically to all the visitors.
  • SETU, the association of self help group got an opportunity to participate in Sakal Aarogya Exhibition. Being a part of Setu, Sanvedana also got a stall in this exhibition.
  • The talk show of self–help group leaders was arranged in Sakal aarogya festival. Yashoda Wakankar represented Sanvedana in that talk show. When the audience heard about so many self help groups at a time, they were really impressed!
  • So many members of Sanvedana have artistic knowledge. Some children with epilepsy have the drawing sense, some youngsters have writing skills and so many of us have poetry sense. Sanvedana tries to tell the members that they can concentrate what they can do instead of being sad on the point what they can not do! So we arrange so many sessions on art like: origami, drawing, writing, poetry, poem reading etc. Because of that some of our members have become performing artist. We have published one article on ‘art and epilepsy’.
  • Indian Epilepsy Association Pune Chapter has started in September 2007. Sanvedana and IEA Pune chapter has started working hand in hand. Dr Nandan Yardi is the chair–person of IEA Pune chapter. First IEA and Sanvedana arranged a program on 2nd Sept 2007. We also celebrated national epilepsy day, 17th Nov 2008 together. Well–known neurologist Dr Hemant Sant and Epileptologist Dr Nandan Yardi spoke on the subjects related to epilepsy.
Yashoda Wakankar
Trustee
Archives
Meeting: 13th March 2005
Like always, this month’s monthly meeting was held at the Shamrao Kalmadi High School hall. The meeting began exactly at 4.30 in the evening, with few members. But the empty spaces were soon occupied by the members coming in a bit late.

The meeting started with the prayer, like it is done always. To commence the meeting then, Yashoda gave us all the good news of the successful surgery of two members, Kshama Prabhune and Shreya Bhave. Everyone was delighted to hear this and gave a good hand for them.

Then Yashoda asked us members to share their experiences on the trip to Soorya Shibir, which was held last month, on the 20th. Chaitanya spoke first and gave a detailed report on the trip. He spoke on how we all gathered at the pick–up point, the antakshari played on the way, the petite voyage by the boat and how we all enjoyed the journey. He also spoke a bit on the games played at the camp, the small orientation walk we all had where Mr. Ajgaonkar gave us information on the trees and plants. He also appreciated the Makrand and his tabla. After he finished his speech, everyone applauded and cheered for him.

Then Yashoda and the group members discussed about the First Anniversary Program which/is to be held on the 20th March 2005. She told us all what exactly the program is to be and then invited all the members by giving them their invitation cards.

Then, Yashoda introduced Mr. Pande, or Pande Kaka to us all. Pande Kaka is a psychotherapist and a professor of Psychology. He practices in the Orange–City Hospital in Nagpur. He was here especially for us all… for the meeting. He was asked to share his experiences as a psychologist and to talk on positive thinking. Pande Kaka first of all asked us all to accept ourselves as we all are. He said that we should love ourselves. He said that to live a happy and a full life, we should enjoy life and take her as she comes, without complaining and cribbing.

He told us that no situations are bad or unpleasant. But what is bad or not pleasant is our outlook towards the conditions or situations. He spoke for Rational Emotive Therapy and how it helps us to improve our thoughts and behaviour and our attitude towards life. Lastly he spoke on positive thinking and said that keeping a positive approach towards life is the best way to enjoy life. He was given a good round of applause at the end of his speech.

Then, the group practiced the song which is to be sung at the program on the 20th. Yashoda had brought her harmonium and she recited the lines and everyone repeated those wordings after her. Even this particular song, composed by Mr. Awachat is full of hope and positive thinking. After practicing it twice, it was decided that the group meet again on the 19th March, a day before the program for some more brushing. Then, the program ended with another song, “Agyan ke andheron se” and we all said the prayer again for Chaitanya on his special request.

Now we all are looking forward to having a successful program, Sanvedana’s First Anniversary Program.

Meeting: 23rd January 2005
Like always, the 12th monthly meeting of ‘Sanvedana’ was held at Shamrao Kalmadi High School, on the 23rd of January, at 4:30 pm. As many as 70 people attended this meeting, which included the members of the group and parents of some members. This meeting, we also welcomed a couple of new members into the group. The chief guest of the first meeting of 2005 meeting was to be, Renu–tai Gavaskar. But unfortunate as we were, she could not attend the meeting and share her ideas with us. However, the meeting continued with sharing of ideas, views, experiences, by the members and their parents.

Yashoda welcomed Chaitanya for having his brain surgery successfully completed at Trivendrum. Chaitanya is an old member of the group, and we all are glad to have him back, fully recovered and problem–free. He expressed his joy and glee by singing to us the song, “Mazhi Chabhi”, for which he was given a good round of applause.

Mohit, another old member of the group was welcomed and congratulated for having passed his S.S.C exams with a good score. All the members gave him a hearty applause and congratulated him on his success.

Ruta shared her views regarding her problem. She had been suffering from this disorder ever since she was seven. Her parents too are also suffering from this same problem. However, she is now happy, as she has had not attacks/seizures for almost 6 years. Nevertheless, she is still undergoing regular treatment and is to be on tablets for a few more years.

Yashoda welcomed Umesh for returning after 3 months from Trivendrum. Umesh too was operated upon, and his surgery successfully done at the Sri Chitra Tirunal Institute, Trivendrum, almost three months ago. Since then, he too is very happy.

Makarand introduced himself and shared his views regarding his problem. He was under treatment of Dr. Nandan Yardi for 20 years. Now he is free from the problem and enjoys his profession, that being of a professional tabla–player. He shared his experiences how he had had problems which sometimes hampered his profession. He said he would be very happy to have his program arranged for the members of Sanvedana.

Mrs. Suwarna shared her views regarding her problem and how successfully she has been able to cope with it. She has been a patient of Dr. Diwate’s for almost 10 years. She is however happy with herself and her business of a milk shop, which she runs near Kamla Nehru Park.

Mrs. Sahastrabudhe also shared her views. She has a workshop in Kanchan Ganga Society in Kothrud.

Yashoda was given a greeting card (by the members of the group) for her good work in support for the members and also for her program, which was recently telecasted on E–TV Marathi. There was yet another round of applause. Yashoda told us all about her views on enhancing the working of the group further, and also increasing the group members. There was a round of applause when she declared that Sanvedana would be celebrating its first anniversary in February. She said she was planning to have a program on this occasion in March. She asked us members as to how can the working of the group be improved or enhanced and how could the interaction between the members be improved. Lots of ideas and suggestions came up, like having two meetings a month, holding social visits to public places, or conducting special programs or hobby classes only for the members of the group etc. There was also a suggestion that one meeting of the two should be only for the members of the group minus their parents.

Yashoda also shared her views and ideas and said that she would like the group to go on a picnic. This would help the members to get introduced to each other very openly as the picnic would be an environment other than the usual meeting place. She asked the members about places where we could possibly go. Suggestion like ‘Maaval Shrusti’, Baneshwar etc came up. Some bright member suggested the place ‘Surya Shibir’, near Varasgaon Dam. Members who had already been to the place told others about the place and how beautiful it is. Makarand volunteered to make all the arrangements as he had recently been to the place and knew the people there. So, it was mutually decided that the group would go to Surya Shibir on the 20th of February 2005, for a picnic. Mr. Apte recited a poem, which he himself had composed in praise of Sachin Tendulkar.

Yashoda then asked the members to join her in the song, a prayer that we always sing to conclude the program. The first meeting of the New Year, 2005 was quite a success as now people were actually sharing their thoughts and feelings, other than their problems. They were, in one word, socializing which was a good sign.

Meeting: 19th December 2004
This meeting of ‘Sanvedana’ was held at Shamrao Kalmadi High School at 4:30 p.m. The meeting was held for sharing ideas, views, experiences, etc. There were many new people who had come after reading Yashoda’s article in Saptahic Sakal.

Yashoda Wakankar started the meeting with a prayer. Yashoda talked about her trip to Holland because this was her first meeting after her trip to Holland. In Holland, Yashoda visited to International Beuro of Epilepsy. The people of the centre were impressed with an epileptic patient running a support group & building confidence in other epileptic patients. They donated books to her. Yashoda has given the books to one of her friends to translate them in marathi. Now she has decided to open a library for this support group.

Radhika, Sanjay, Suvrat, Sanjay J., Reshma, Yogesh (father of an epiliptic boy – Piyush), Srikrishna, Mother of Reshma, Father of Mahesh shared their experiences.

This support group will celebrate its 1st year anniversary in February.

Meeting: 12th September 2004
This meeting of ‘Sanvedana’ was held at Shamrao Kalmadi High School at 4:30 pm. Dr. Vijaya Sathe was the guest of honour for our group meeting. She is a well known dietician in India and has cured some epileptic patients in India & the US with the help of diet. She treats all kinds of diseases with diet & for normal people as well. According to her, allopathy medicines does the job of repairing during an illness, whereas nutrition & diet does the job of servicing.

The topic of her talk was on nutrition therapy for epileptic patients.
The science of food pharmacy is developing as a guidance to a proper diet.

Requirement of all nutrients are not met in our daily diet, therefore there we are at risk of increase in the number of different kinds of diseases.

The medicines which we take for these diseases contain foreign chemicals which may be harmful to our kidney, liver & brain. These medicines never reach the root cause of the diseases. So instead, if we have a proper diet with right vitamin supplements, our health will improve.

Effects of Epilepsy
  1. Loss of self–confidence.
  2. Increase in dependability.
  3. Affects health due to increase in mental tension.
Causes of Epilepsy
In this disease some part of brain (brain cells) get excited. Its causes are as follows:
  1. Head injury in an accident.
  2. Lack of oxygen – during birth. Lac of oxygen for even a fraction of second would cause convulsion. If proper dosage of vitamin E is given during antinatal care, it wil help to reduce this risk.
  3. Excess of Alcohol consumption.
  4. Poisoning
    • Especially lead poisoning from automobile exhaust.
    • Viral high fever.
    • Paralysis stroke affects the brain & leads to epilepsy.
    • High blood pressure in pregnancy affects the baby’s mental growth.
    • Ill effects of medicines especially birth control pills.
    • Deficiency of food (malnutrition).
    • Allergy – food colours & essence, sodium benzoate, also cause epilepsy.
Due to inactive life, mental stress, fruits & grains grown through artificial means & harmful methods of cooking food, we don’t get sufficient nutrition. Thus there is increase in demand for vitamins & minerals in our body.

Now a days, doctors only prescribe medicines & do not advice proper diet. Vitamin B6 plays an important role in treatment of epilepsy.

Proper diet & vitamin B6 supplement helps in reducing the ill effects of medicines & helps in overcoming memory loss suffered by epileptic patients.

Vitamin B6 is to be taken with magnesium. Magnesium helps in reducing excitability of brain. We get magnesium in Nuts, Badam, Pista, Til, Groundnuts, Green Vegetables & Sprouts. The medicine prescribed for epilepsy have the tendency of causing deficiency of folic acid.

So in our daily meal we should have:
  1. Lacto sugar – from milk & curd.
  2. Proteins – fibrous food, fermented foods like idli & dosa, Lahya, paneer, yeast, rice bran.
  3. Folic & B – Complex – Green Vegetables & Fruits.
We should always have only seasonal fruits & vegetables, Sprouted methi seeds, egg yolk & soyabean gives Colene.

Conclusion
Dr. Vijaya Sathe concluded her speech by emphasizing the need to treat epilepsy through proper diet & nutrition & reducing the intake of medicines over a period of time.

Ms. Radhika Deshpande thanked Dr. Vijaya Sathe for spending her valuable time at the meeting & presented a bouquet of flowers to her.

Meeting: 22nd August 2004
Sanvedana’ was held at Shamrao Kalmadi High School at 4:30 p.m. There was a good response for the meeting, many of the patients were present along with their parents. Out of them, many were new patients. Yashoda Wakankar started the meeting with a prayer, and then welcomed all the patients (or we can say members of the meeting) and parents. She shared the good news about one of our members who had gone to Trivendrum for brain surgery.

At this meeting, many patients like Nikhil, Amol, Shruti, Rohit, Chaitanya, Nitin, Pradnya, Mr Gokhale shared their experiences regarding epilepsy. Some of the parents like Mr. Pankhavala, Mr. Shelake, Mrs. Afale, Mr. Dev, Mrs. Dumbare, also shared their experiences of their epileptic children. Mr. Dev shared his bad experience of no medical treatment in Niraj clinic.

Yashoda welcomed Mr. Anil Avachat as well as Mr. Abhay Bhang by giving each of them a rose.

Mrs. Sahastrabudhe shared her experiences as a parent and how she kept her son Rohit, engaged. She said that there is an institute named ‘Yoga Prabha Sanstha’, which works to keep slow learners engaged as well as for the retired people. Every day Rohit attends their workshop and makes some creative things. At this institute children make different items, retired people keep an eye and help them and their parents to market these items.

At the end of the meeting, Yashoda introduced the guest Dr. Abhay Bhang, who works in Gadchiroli for Adhiwasies and rural people. Dr. Abhay Bhang had come here just as a listener. He felt very glad when he heard all the sharings.

Dr. Anil Awachat had written a poem for our group. We sang that poem as a group song. Meeting was ended with some of our member’s poems, songs and a prayer.

Yashoda ended the meeting by announcing that the next meeting will be on 12th September and the Guest would be Vijaya Sathe.

Meeting: 18th July 2004
Yasho Yasho
The last meeting of ‘Sanvedana’ was held at Shamrao Kalmadi High School at 4:30 p.m. There was a good response for the meeting and any of the patients were present along with their parents. The chief guest for this meeting was Dr. Maya Tulpule. Yashoda Wakankar started the meeting with a prayer, and then welcomed all the patients (or we can say members of the meeting) and parents. She then welcomed Dr. Maya Tulpule by presenting her with a bouquet of flowers.

Dr. Maya Tulpule was invited to talk about “Shweta” – a support group started by her to bring together people suffering from vertiligo. This is an illness in which the patients suffer from white patches on the skin. Dr. Maya Tulpule has been facing this problem since childhood and specially during her pregnancy, when her whole body was affected. She studied the causes of vertiligo and personally met the people affected by this illness, but did not find any specific cause. This is when she started a support group known as “Shweta” so as to discuss problems faced by the patients in their day to day life. They try to find solutions to the patient’s problems. This support group meets every Sunday 5 to 7 pm at Narayan Peth. There has been a good response and over the last 3 years, 300 members have joined “Shweta”.

Finally, Yashoda Wakankar thanked Dr. Maya Tulpule once again for coming to the meeting & then declared the meeting as ended.

Address for Meetings
Shamrao Kalmadi High School,
Kelkar Path, Prabhat Road,
Pune - 411004

Contact Person
Yashoda Wakankar
Cell Phone: +91.9822008035

Radhika Deshpande
Cell Phone: +91.9850887644
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